About the Canadian
Down Syndrome Society


About us

The Canadian Down Syndrome Society (CDSS) is a national non-profit organization providing information, advocacy, and education about Down syndrome. CDSS supports self-advocates, parents, and families through all stages of life. The Canadian Down Syndrome Society is a Registered Charitable Organization (Canada Customs and Revenue Agency Business Number 11883 0751 RR 0001).

Read the official position of the Canadian Down Syndrome Society on controversial or special issues surrounding Down syndrome.

Meet the dedicated board members and committees who guide the Canadian Down Syndrome Society, their nomination process and expectations.

Read the latest press releases from the Canadian Down Syndrome Society, download the Media Kit and meet the media contact.

Find all the contact information for the Canadian Down Syndrome Society and get in touch with us today.

CDSS Provides

  • Up-to-date information for individuals with Down syndrome, their families, educators, caregivers, and professionals
  • A self-advocate-led committee called VATTA (Voices At The Table for Advocacy), which advises CDSS on what is important to the community.
  • Resources like the New Parent Package, Educator Package, Mind & Body: Answers To Your Questions, and Today and Tomorrow: A Guide to Aging with Down Syndrome are available in digital and print formats. Most of our resources are also available in French.
  • Our e-newsletter, which keeps members and donors up to date on what’s new in the community and at CDSS, and celebrate stories from around the world.
  • Resources in various fields, supporting all life stages of a person with Down syndrome.
  • A network of Down syndrome groups in Canada.

Our Vision

All people are valued, fully participating citizens.

Our Mission

To empower Canadians with Down syndrome and their families. We raise awareness and provide information on Down syndrome through the prenatal, early childhood, school years, adulthood, and retirement stages of life.

Canadian Down Syndrome Society Staff

  • Executive Director: Kirk Crowther
  • Interim Executive Director: Laura LaChance
  • Resource Coordinator: Liza Kiegler
  • Database Coordinator: Debbie Monaghan
  • Director of Development: Kate White
  • Marketing & Communications Manager: Kristen Halpen
  • Awareness Leader: Paul Sawka

Join Our Team